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Articles


Letter on Record Access by Sir Graeme Catto (GMC-UK)

3 Nov 2007

Sir Graeme Catto, President General Medical Council, UK

Sir Graeme Catto

Records Access

The GMC’s statement of the values of the profession Duties of a Doctor and our core guidance Good Medical Practice emphasise the importance of doctors working in partnership with patients. To achieve this, doctors and patients need to communicate effectively with one another, and doctors must provide patients’ with information that they want or need to know in order to make decisions about their care. For example in Duties of a Doctor we say that doctors must:

Work in partnership with patients

  • Listen to patients and respond to their concerns and preferences
  • Give patients the information they want or need in a way they can understand
  • Respect patients’ right to reach decisions with you about their treatment and care
  • Support patients’ in caring for themselves to improve and maintain their health.

We welcome and support the use of new technology, including records access systems, which can make a significant contribution to the provision of information patients need in order to make decisions about their care.Of course, patient access to records, on request, has been a requirement under the Data Protection Acts since 1991. The current Act provides safeguards for patients themselves, and for the privacy of third parties. Clearly these legal obligations must be met, whatever means is used to give patients access to records.

Providing access to records outside the context of the Act does introduce some new questions, including the need to record information in a way patients can understand, how bad news, for example from test results, is communicated to patients, and how patients’ privacy can be maintained.

These are not new issues of principle, but practical matters that need to be addressed sensitively. They do not undermine the principles of openness and honesty with patients, or of the benefits of partnerships with patients, which records access systems will foster, and that the GMC supports.

Letter to Dr. Brian Fisher, 31 October 2007, publication authorised by Sir Graeme Catto.


Why doctors should not fear but can profit from patients access.

19 Aug 2007

Author: dr. Brian Fisher, GP, London

Brian Fisher

Patients’ record access is here to stay. It is available now in many countries and is gradually extending across the world. There are different systems, through smart cards, kiosks in GP waiting rooms and online.

The reason for this is clear - it is safe and very helpful for patients and for clinicians. The benefits often overlap - what is good for patients is also helpful for professionals. I write this paper from the basis of experience - I have been showing my patients their records for over 20 years now. In the last year, we have been doing this online. We have carried out extensive research in the field. Our learning can help you proceed more safely and more swiftly.

Some of the benefits and risks do depend on what the system of access allows. We therefore feel, on the basis of the evidence, that the ideal process should allow:

  • Access to the full electronic record
  • The ability to view whenever andwherever the patient wants
  • The patient should be able to be reminded of key heath appointments
  • The patient should be bale to screen off information that they do not want selected professionals to see.

So, what are the benefits and the risks?
Read the rest of this entry »


Welcome!

25 Aug 2006

Welcome to the UK Patient Record Access blog!The goal of this blog is to offer patients as well as clinicians the possibility to give their view and experiences on Record Access on an independent platform.The goal of this blog is to offer patients as well as clinicians the possibility to give their view and experiences on Record Access on an independent platform.This platform has arisen from the general ICMCC portal on Patient Record Access and has become the inspiration for other national discussion platforms.

The goal of this blog is to offer patients as well as clinicians the possibility to give their view and experiences on Record Access on an independent platform.This platform has arisen from the general ICMCC portal on and has become the inspiration for other national discussion platforms.We hope you will enjoy taking part in our discussions.

Lodewijk Bos
President ICMCC


Discussion


ICMCC Event 2008 Registration Fees

Registration includes luncheons, coffee and conference book.

A special registration fee of € 100 per day is offered to members of not-for-profit patient organizations.


Online registration is closed. You can register on site, starting June 9 at 9.00am, at the Marylebone Campus.
All prices are exempt of VAT.

Registration On site
Science & Medical Doctors
Full
€ 700,00
Science & Medical Doctors
One Day
€ 350,00
Industrial Full € 800,00
Industrial One Day € 400,00
Student Full € 350,00
IFMBE Full € 650,00
Patients
members of not-for-profit patient organizations
€ 100,00 per day
Panel discussion only
Tuesday 10 June
€ 100,00/GBP 80,00
BCS members € 50/GBP 40
Conference Dinner (June 10) € 80,00

Questions raised about patient access to GP record:

What happens if a patient is misrepresented by those writing the notes whether its a GP or another clinician such as a psychiatrist/psychologist?


When the heat is over

Record Access Discussion
in The Guardian, 1 November 2006

‘A national database is not essential’

Warning over privacy of 50m patient files

From cradle to grave, your files available to a cast of thousandsWe invite you to continue here to discuss issues concerning record access.


EHR for psychiatric patients

Referring to a recent article on specific aspects of EHR for psychiatric patients, we would like to start a discussion on how the EHR can help the psychiatric community as well as how to deal with these specific issues. We would like to invite clinicians as well as patients to participate.
Read the rest of this entry »


Terminology

There is quite some confusion about terminology.

In my view, EHR (Electronic Health Record) should be the envelopping term, including EMR, ECR and PHR.
Read the rest of this entry »


All discussion items

News


Connecting for Health - What For?

7 Jul 2008

“I asked him what Connecting for Health was for. He seemed taken aback. It was obviously so that every professional in the NHS could have access to every patient’s records whenever they presented for care. I asked him what was wrong with the patient (or parents in the case of young children) telling the doctor what their main problems or important background conditions (for example diabetes) were. His response was that this was no use in an emergency when the patient was unconscious. My response was to point out that anyone dealing with a patient in an emergency would need to be sure they had the right address and other details on a patient – there are over 70 J Smiths in my local phone book – before relying on an electronic record, even if it could be downloaded instantly. I also pointed out that a simple bracelet, neck tag or card in the wallet could provide important health information such as diabetic status, without the need for either a download or finding the correct address.”
Article
Tony West, NHSPolicyComment, 7 July 2008


HealthSpace site lets patients manage medical records online

4 Jul 2008

“A website allowing patients to manage their health records is to be set up by the government in an attempt to give people more control over their care.
The website, HealthSpace, which is being piloted, will allow patients to record information about their health as well as what treatments they are receiving.”
Article
David Batty, The Guardian, 4 July 2008


Access to NHS care records may be widened

3 Jul 2008

“The Department of Health is to review the scope of access to the NHS Care Records Service, including possibly of making them available to non-NHS staff.
Under the proposals the DH will look at making the electronic patient records available to a much wider range of groups involved in patient care, including social care bodies, voluntary and private sector organisations and pharmacy, dental and optical services.”
Article
e-Health Insider, 3 July 2008


GMC says patient confidentiality ‘is absolute’

3 Jul 2008

“Patient confidentiality is absolute; patients must give their consent before their data can be used, General Medical Council president, Sir Graeme Catto, said this week.
Speaking at the BCS Primary Health Care Specialist Group summer conference, Sir Graeme said the insistence on consent was a good thing and would foster the partnership approach with patients.”
Article
e-Health Insider, 2 July 2008


Darzi NHS review promises patients online access to care records

1 Jul 2008

“Patients ‘have a right’ to see record and suggest corrections, Darzi says.
Patients will have online access to their electronic health records within the next year, according to yesterday’’s review of the NHS by Lord Darzi.”
Article
Leo King, ComputerWorld UK, 1 July 2008


Medical records on the internet: a revolution in healthcare or a security disaster waiting to happen?

29 Jun 2008

“NHS patients could soon by logging on to see their health records - but do the benefits outweigh the security risks?
Dr Amir Hannan is no ordinary GP. Depending on your point of view, he is an internet pioneer, the future of British medicine or a worrying maverick.
But then Dr Hannan’s practice, Horton Thornley Medical Centres in Hyde, Greater Manchester, is no ordinary GPs’ practice. ”
Article
Fran Yeoman, Times Online, 28 June 2008


All UK EHR articles